The LAM Foundation

4520 Cooper Road Cincinnati, OH 45242-5689
Phone 513-777-6889
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Specification
Our missionThe LAM Foundation urgently seeks safe and effective treatments and ultimately a cure for LAM through advocacy and the funding of promising research. We are dedicated to serving the scientific, medical and patient communities by offering information, resources and a worldwide network of hope and support.
Ways to help

Development or Fundraising

Fundraising and development opportunities include organizing special events, organizing quick fundraisers, joining The Foundation’s online fundraising efforts, soliciting major gifts, and recruiting other volunteers.

  • One-time, Occasional
  • Adults
  • Individuals, Groups (2-10), Corporate Teams
  • Event support, Indoor
  • None, On-site
  • Weekdays, Evenings, Weekends

Communications or Public Relations

We can use your help in producing and distributing news releases, creating posters and flyers, and developing positive relationships with the media in your community.

  • One-time, Occasional
  • Adults
  • Individuals, Groups (2-10), Corporate Teams
  • Indoor, Outdoor
  • None, On-site
  • Weekdays, Evenings, Weekends

Awareness Activities

Hold an educational event about LAM and The LAM Foundation in your home, school, church or other social outlet.

  • One-time, Occasional
  • Adults
  • Individuals, Groups (2-10), Corporate Teams
  • Indoor
  • On-site
  • Weekdays, Evenings, Weekends

Advocacy

Make calls, write letters and send e-mails to your legislators when there are critical issues that affect healthcare, research and rare diseases. Your voice makes a difference.

  • One-time, Occasional
  • Adults
  • Individuals, Groups (2-10), Corporate Teams
  • Indoor
  • None, On-site
  • Weekdays, Evenings, Weekends
How you helpVolunteers help in many ways including educational events about LAM, fundraising (organizing special events, quick events, or online), communications and PR (producing and distributing news releases, creating posters and flyers, and developing positive relationships with the media in your community), advocacy, and more.
About usThe LAM Foundation is a non-profit, voluntary health agency whose primary goal is to find an effective treatment and ultimately a cure for lymphangioleiomyomatosis (LAM) through peer-review funding of promising research.
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4520 Cooper Road Cincinnati, OH 45242-5689

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The LAM community is saddened by the passing of Kathy Trapp of Beavercreek, OH.  Kathy bravely fought LAM and TSC for the last 38 years.  She spent her life tirelessly educating doctors, nurses and scientists about LAM and TSC by sharing her story. She was proud to have her tissue donated to LAM scientists to continue this fight even after her passing.

The LAM community is saddened by the passing of Kathy Trapp of Beavercreek, OH. Kathy bravely fought LAM and TSC for the last 38 years. She spent her life tirelessly educating doctors, nurses and scientists about LAM and TSC by sharing her story. She was proud to have her tissue donated to LAM scientists to continue this fight even after her passing. ... See MoreSee Less

 

Comment on Facebook

My mom, Kathy Trapp's viewing will be on Tuesday May 29th at Christ Episcopal Church in Dayton, Ohio at 12 pm. The funeral service will be at the church also and start at 2 pm. From there we will head to Bellbrook Cementary in Bellbrook Ohio. Burial will be at 3:30 pm. Afterwards, there will be a celebration of life party starting at 7 pm at my parents house. All are welcome!

I’m so saddened to hear of Kathy’s death. She fought so hard for so long.

My sincere sympathies to her family and friends and the special Lammie community. It’s thoughtful women like her who donate tissue and enroll in trials that bring about medical advances in the LAM community. Thank you so much! 💕

kathy had a kidney transplant and a lung transplant too i believe. i also met her several times many yrs. ago . rip 😢

So sorry to hear this! I met her at LAMposium after her lung tx and she just glowed! She fought hard for life.

Thank you for posting my sweet, kind, compassionate mothers memory! Anytime she could participate in LAM or TSC research she did!

So sadden by the passing of another LAM sister. Blessing to her family. May you be comforted by your good memories.

Rest in pain free peace, breathe Easy now Kathy. Go find Drea & Becky , they’ll show you around ❤️❤️

Awh... I realy liked her... She was a sweet person. She fought a good bsttle. .

Sending love and condolences to her family 😢💔

Godspeed, thank you for your service. Longevity 38 years while fighting is a beautiful gift.

Thank you for letting us know.

RIP Lam Sister. Prayers and condolences to the family. Thank you for your generous gift and love ❤️.

To Kathy's family, Thanks for all she did in the progress that has been accomplished due to her efforts in fighting LAM🙏

I am so sorry for your loss. I got to know Kathy through the LAMposiums & also since we both had lung transplants. She will be missed. God bless the family.

So sorry to hear this. Sympathies for the family.

I met Kathy right after I was diagnosed in 2001. She came to my home in Fairborn and we did an interview with The Fairborn paper about Lam. It was a pretty nice article with a picture of us. She was so helpful to me since I was newly diagnosed, she was so good at answering the interviewers questions. I will forever remember her and the brave warrior that she was! Prayers for the family. Breathe easy and fly high my sister.

Sending my sympathy to her whole family.

So very sorry for your loss. Sincere condolences to family & friends.

May her memory be a blessing!

Sending you my condolences to her family.💕

No words for this advocate but heart felt prayers for her family

Sorry to hear of her loss . This desease has taken so many beautiful people .

I’m so sorry to hear this. My prayers are with you and the family Melanie!

R.I.P.P Kathy. Lord Jesus please comfort this family

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6 days ago

The LAM Foundation
We’re at the American Thoracic Society conference in San Diego this week, educating pulmonologists and researchers about the latest in LAM!

We’re at the American Thoracic Society conference in San Diego this week, educating pulmonologists and researchers about the latest in LAM! ... See MoreSee Less

 

Comment on Facebook

Are dark jackets a requirement or are you all cold?

Thank you for your hard work.

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